Firbromyalgia is:

• Waking up tired and hurting more than when I went to bed.
• Having to schedule recovery days after any day where I exert myself at all.
• Ditto for days when I encounter any stress.
• Doctors not believing my pain levels.
• Considering a pain level of 3 as baseline normal.
• ITCHING for no good reason!
• Cold and tingling feet when it’s 80 degrees outside.
• Never knowing ahead of time how functional I will be on any given day.
• Memory issues even worse than those caused by the brain damage.
• Suddenly struggling to focus on things when I have the ability to hyperfocus.
• Never knowing when my gut will behave itself. (Bonus: This is exacerbated by the hernia.)
• Having to relearn my physical capabilities.
• Trying everything possible to get relief, but only finding a few things that partially help.
• Having to budget my spoons/spells that much more carefully.
• My skin being so sensitive that clothing hurts.
• How does pain burn???
• Relief in knowing that there is an explanation and that it’s not something worse.